Health inSite: Privacy, Security, and “What’s with my damn data!”

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I will be moderating a tweet chat on May 16th with the crew that participates in #HITsm (Health Information Technology / Social Media) and thought I’d go ahead and post those here for anyone else that might be interested or wanted a teaser for that chat.

These topics will be cross-posted on the HL7 Blog for TweetChats closer to the event.

We live in a data-damp world.  While we’ve always generated tons of data, never has it ever been so catalogued and retrievable.  We have begun a shift in our willingness to allow outside groups to do this for us in some cases, for example, in cloud-based applications, social networks, and the like.  It’s not true for everyone, but there’s no question there’s a shift in our culture toward allowing more of this.

#HITsm T1: Is releasing more a/b ourselves an increase in trust, or risk-taking? Is that a positive thing? How is it impacting healthcare?

Some might make the case (myself included) that this is a positive thing as we continue to share ourselves in a way that allows our impact on each others’ decision-making to become more transparent (blog posting) and potentially affect-able.

#HITsm T2: What is the balance between transparency and privacy/security that makes sense when it comes to healthcare? How?

Twitter Head of Safety, Del Harvey (@delbius), recently gave a TEDtalk about how the scale of Twitter requires significant considerations in how Twitter protects its users, in many cases, from themselves.  For example, Twitter made the decision to remove geo-tagging meta-data from photos that are posted to Twitter to ensure that users could not be tracked live as they posted information.

#HITsm T3: What patient data in healthcare may be innately helpful or harmful to safety/security, known or unknown? Examples?

If we accept the premise that some information should be shared for the benefit of the social network (friends, family, neighbors, etc.) in terms of how behaviors affect the health and wellbeing of all who access the healthcare system (effectively all citizens under the Affordable Care Act), who should set what/where/how that information should be shared?

#HITsm T4: Who should control access to data re: healthcare info? Should there be suggested min. shared data? What parallel models exist?

In a somewhat humorous interview with former NSA chief Keith Alexander on his HBO show “Last Week Tonight,” John Oliver asked if recent outcry regarding privacy among the US population was simply a branding issue for the NSA to which there was some assent from the former head.  Sarcasm aside: there may be value in rebranding the healthcare system to focus on increasing sharing to leverage shared health decision-making.

#HITsm T5: If we want to increase sharing data to leverage shared #HC decision-making, how can #HealthIT and #SoMe help?

Have thoughts you want to share? Feel free to comment below!

To our health,

Ryan Lucas
Manager, Engagement & Development
Follow me on twitter: @dz45tr

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